Scott's story

Scott's story

You can make a BIG difference. Read Scott's story and learn how you can help families like his get the support they need.

Meet Scott, a local dad supported by Charlie House

Meet Scott, a local dad supported by Charlie House

Originally from Liverpool, Scott met his wife Mairi while working in the Middle East, before having two beautiful children, Lottie in 2013 and Elena in 2016.

The youngest, Elena, has a genetic condition called CHARGE syndrome. This is an inherited disorder caused by a mutation in the DNA-binding protein-7 CHD7 gene. In Elena's case, this means colobomas in both eyes and due to their severity she is registered blind.

She went underwent heart surgery at 3 months old due to heart abnormality and will always be under a surveillance plan specified by her cardiologist, with more surgery being a possibility in the future.

Elena is also hearing impaired, has sensory processing and learning difficulties.

Scott

Scott

Father supported by Charlie House

Having a child who is completely reliant on you for all their daily needs and care is hard at times. Knowing that your child is unlikely to ever be fully independent is hard at times. Worrying about your child's health and development and not knowing what may or may not lie ahead is hard at times for sure.

When Elena was 7 months old, they discovered Charlie House

When Elena was 7 months old, they discovered Charlie House

"Charlie House is a support network like no other. The whole Charlie House team will go above and beyond to help and support in any way. It's a fantastic place to meet families who are in similar circumstances to your own, and is a lifeline to many families like ours.

The support they provide is indispensable. My wife Mairi has made life long, solid and special friendships with lots of other Charlie House mums and our eldest daughter Lottie has formed lovely friendships with other siblings."

Whether it be support or advice on medical needs, behavioural issues, NHS points of contacts or just a shoulder to cry on or someone to laugh along with you, Charlie House team are always there."

Scott
Father supported by Charlie House
Make a BIG difference by supporting families like Scott's

Make a BIG difference by supporting families like Scott's

By donating a small amount, you can make a BIG difference to lives of children with life-limiting or life-threatening conditions, and their families, in North-east Scotland.

£10 could offer a child the gift of joy through a fun activity like music therapy

£30 could create lasting memories for siblings and grant them access to invaluable peer support

£50 could offer emotional support to a family member when they need it most

A Father's Day Q&A with Scott

Read more stories from families like Scott's

Learn more

Learn more

Learn more

Scott's story

Make a BIG difference

Help us improve the quality of life for children in the North-east of Scotland who have life-limiting or life-threatening conditions

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